
AustismEDU, founded by Sharon Sexton
was started in 2006. The company’s main focus is to
create revolutionary educational software for the benefit
of people with Autism Spectrum Disorders
(ASD’s). Its mission is
also to provide up to date information about Pervasive
Developmental Disorders (PDD),
which include Autism, Asperger’s
Disorder, Pervasive Developmental
Disorder - Not Otherwise Specified
(PDD-NOS), Rett’s
Disorder and Childhood Disintegrative
Disorder (CDD) via the
worldwide web for families and professionals. It is also dedicated
to helping parents obtain the best possible education for
their children with Pervasive
Developmental Disorders.
Mrs. Sharon Sexton is a parent of a
child with an ASD as well as a
professional. She holds a BA in Psychology from SUNY Stony
Brook and a Masters of Science in Special Education from Dowling
College. In addition, she has completed a three course graduate
level certificate program from the University of Albany in
Autism. She currently works part-time
with young children with ASD’s
and is in the process of applying to become a Board
Certified Behavior Analyst (BCBA).
"Embracing Difference: Our Journey With Autism" Audio Slideshow
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My Story
Autism was a word I knew very little about until my first
child was born. William was born two weeks after his due
date. I was finally induced into labor. After twenty-three
hours of labor and only dilating 4 centimeters, William was
delivered by Cesarean section. He was born on June 6, 1996,
and weighed 9 lbs. 12 oz. and was 21 inches long. He was
a big boy and
still is.
As an infant William rarely cried and was a very easy going
baby. I remember him sleeping very well and also having some
trouble sucking from his bottle. I thought nothing of it.
I was told by my parents that I had the same temperament
as a baby.
William
walked by 1 year of age. I don’t think he ever really
crawled. He started to use a couple of words at about this
time and then just stopped. He rarely pointed to items or
toys to get my joint attention. He was very happy watching
his Disney videos, which he had memorized. He would act out
scenes of the videos exactly as they were in the movies.
Although he couldn’t read yet, I realized then that
he had visual memory way beyond his years. He could tell
you which video he wanted by just looking at the black words
on the tape. He had memorized the visual layout of each of
the videos. William was also a master at figuring things
out with his hands. He operated the VCR and TV by the age
of 1 ½ and was excellent with Puzzles.
At about 2, he taught himself how to navigate the windows
operating system of a computer. William was a natural on
the computer and still is. He learned quite a bit of academics
from learning software such as Reader Rabbit, Disney Preschool,
and Elmo’s Preschool.
At about the age of 2 ½, my husband and I decided
to get him evaluated. Although, we thought that he was bright,
we were very concerned with his language development. Although
he could label items in his environment, he had a very difficult
time putting words together and having a social conversation.
He also had a lot of difficulty following directions, answering "WH" questions
and communicating his needs. Needless to say he qualified
for services.
Although one of his EI providers had once said to me he
had Autistic tendencies, I didn’t really think he had
Autism. William did not fit the image I had of Autism. He
did not rock in the corner or engage in strange behavior.
He did from time to time line up his cars, but it wasn’t
an all-encompassing behavior. At home, he played with his
Thomas the Tank Engine Trains, watched Disney videos and
played games on his computer.
When his EI services lapsed, I decided to see how he would
do in a typical pre-school program. He had a very rough time.
He was on his own agenda for most of the school day and the
teachers had a very difficult time getting him to join in
with the group. I ended up pulling him out of the program
and put him in a new program. I tried a local Tutor Time.
He had a difficult time there also. He basically behaved
in the same way he had at the other pre-school. The teachers
though were very impressed with his academic skills. William
could at that time label all his letters, upper and lower,
numbers up to 20 and could read words. He was also doing
pretty well with potty training. Tutor Time urged me to get
him evaluated again. I did.
In October of 1999, a very nice man from Theracare agency
came to our house to do the Psychological part of the Evaluation.
It was at this time that the dreaded “A” word
would finally hit home. He said that William is a bright
boy with Autism. According to the CARS, an Autism rating
scale, William had fallen in the mildly Autistic range. He
had actually just made it on the scale. He had also said
that William would “outgrow” most of it. That
gave me a lot of hope. I don’t think that he realized
how important those words were to me at that time. Those
words would carry me through the next very difficult couple
of years.
Needless to say, I was numb. While some people join organizations
for support, that was not me. I needed to come to terms with
it by myself and with my family. It was then that I began
my extensive research on Autism. I felt a need to understand
him. To understand why he didn’t learn the way typical
kids did. After countless hours of reading and research and
muddling through all the different terms out there such as
hyperlexia, non-verbal learning disability, semantic pragmatic
disorder, ADHD, etc., I was finally at peace. I was ready
to now do something about his disability.
I read “Let Me Hear Your Voice” by Catherine
Maurice. This was an eye-opener for me. At this time I realized
that William was not getting the type of education he needed
to learn and succeed. Following his evaluation in October
of 1999, William was placed in a self-contained program at
a local preschool for children with disabilities. He was
not getting any ABA services. His speech teacher had been
working on the concepts same/different for months with little
progress. I knew then that he needed to be taught language
using the principle of ABA in a one-to-one setting.
Now, William was almost 5 years old and was falling more
and more behind. The district finally agreed to 20 hours
a week of ABA therapy for William. He was also taken out
of the self-contained setting and placed in an integrated
setting at the same pre-school. William's progress sky-rocketed.
He was now learning at an alarming pace. It was difficult
keeping up with his program book. I was determined to move
him as quickly as possible. He had already lost so much time.
Ken and I worked at generalizing the new concepts he had
learned during formal instruction into the natural setting.
William did wonderfully. I couldn’t believe the results.
William is now 9 ½ years old and is a fourth grader
in his home school. He is mainstreamed in all classes and
has been since kindergarten. He communicates well and is
working on grade level with few accommodations. He does still
receive speech therapy in school for his pragmatic skills
and also receives resource room services. Overall, William
is doing extremely well. He takes the ELAs like everyone
else and participates in band and chorus. At this point,
his major deficits lie in the social domain. Although he
can have a conversation with you, his ability to understand
other people’s intentions, understand figurative speech/idioms,
and naturally pick-up on our social customs are still difficult
for him. He does however look for clarification often from
us. For example, recently he asked me what the phrase “rock
bottom” meant. He heard it being used in a TV commercial
and didn’t understand how it was being used.
William has inspired me to think outside the box. He has
made me question many of the things that we all sort of do
just because everyone else does it. William is not as motivated
to “fit in” as the rest of us are. He actually
sees the world much more clearly than most of us do. He is
not tainted by all the restrictions placed on how we “should” behave
or think. William is very “real”. There is not
a “fake” bone in him. I love that about him.
I wish that more people were like that. He is William through
and through and I love him for it.
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